Friday, March 30, 2012

To begin...

My name is Joelle Marie. I do not use my last name for personal reasons, ever. I am 17, a senior in high school, and on my way to college in a few months. I have Cystic Fibrosis. My blog will mainly be about that, the struggles we go through, and the struggles I myself go through. A couple things I might refer to. A Cyster is a CF Female. A Fibro is a CF Male.  We just lost another Cyster, Kelsey Savage, and I'm pretty sure she was around my age. It's really hard when someone dies from the same thing you have, knowing you will probably have the same fate one day. Cystic Fibrosis is the number one terminal genetic illness. Meaning it will most likely kill you, and it is also genetic, so you get it from your parents, it's NOT contagious. 

I don't really know a lot about much, but I know random facts, and I know CF. There is no cure yet, but they are close. But people are still dying because we are not there yet. 

I can't be sure who will be reading this, whether family will be or not. But I won't  not talk about stuff because people are reading it. Of course I've always been pretty blunt. So I just got home from babysitting three of the prettiest girls in the world, and I am going to say goodnight, go to bed. It's about 12:15am. I haven't had more then 3 hours of sleep in about 2 weeks. I'll explain that later though. So lets toss and turn for a few hours, and then pass out. Busy weekend, friends to see, kids to watch. Goodnight all. 


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