Saturday, March 31, 2012


Fire. I love fires. The colour, the feel. I love to start them, to watch them, the smell, to roast marshmallows and make s'mores. I always had a dream of being a firefighter, and then one day becoming a pyrotechnician or even a head fire-chief who figures out how the fire starts. .

I saw a movie once about SmokeJumpers, I don't remember the name but I remember the movie. Since then, I wanted to do that. I love being in the air, and always have wanted to sky dive. So a skydiver and a firefighter mixed? It was a dream job for me. I would LOVE to parachute into a fire and put it out. But for a CFer, that is not possible. I have coughing fits when someone wears perfume and walks by me on the bus. My mom has to wait until we get out the car to wear whatever spray she wants. Really strong air fresheners can give me an attack. Fire smoke? Forget about it. But I found passion in something else: Cooking.

Having this illness, you need a very high calorie diet. You have to have like, a million calories a day. I am a very picky eater, it's crazy.I started to cook my own foods, and found out I was amazing at it. I can bake very well, and it comes pretty easily to me.I will be going to college next year to start my culinary program. And then I will open a restaurant one day, maybe in another country like Puerto Rico. Restaurants are crazy, there is always something different every day and that's what I love.

Friday, March 30, 2012

To begin...

My name is Joelle Marie. I do not use my last name for personal reasons, ever. I am 17, a senior in high school, and on my way to college in a few months. I have Cystic Fibrosis. My blog will mainly be about that, the struggles we go through, and the struggles I myself go through. A couple things I might refer to. A Cyster is a CF Female. A Fibro is a CF Male.  We just lost another Cyster, Kelsey Savage, and I'm pretty sure she was around my age. It's really hard when someone dies from the same thing you have, knowing you will probably have the same fate one day. Cystic Fibrosis is the number one terminal genetic illness. Meaning it will most likely kill you, and it is also genetic, so you get it from your parents, it's NOT contagious. 

I don't really know a lot about much, but I know random facts, and I know CF. There is no cure yet, but they are close. But people are still dying because we are not there yet. 

I can't be sure who will be reading this, whether family will be or not. But I won't  not talk about stuff because people are reading it. Of course I've always been pretty blunt. So I just got home from babysitting three of the prettiest girls in the world, and I am going to say goodnight, go to bed. It's about 12:15am. I haven't had more then 3 hours of sleep in about 2 weeks. I'll explain that later though. So lets toss and turn for a few hours, and then pass out. Busy weekend, friends to see, kids to watch. Goodnight all.